A distant hope for long-term returns or vague calculations …don’t seem to carry the day in hospitals and clinics facing large and immediate financial losses.-Don Berwick (IHI, CMS)
What’s measured improves. -Peter Drucker
So much of health adminstration is a struggle to understand what is happening internal and external to the organization, without ever having a very good grasp of the precise numbers…or even of the validity of the numbers. It’s the easiest thing to accidentally compare apples and oranges…
This post is intended to be a living list of the most relevant data sources for current and future health administrators. Focus is given to marketing, public health, and workforce statistics–but consideration will also be given to “thought frameworks,” libraries, and other types of databases.
Feel free to recommend a source by commenting below and I’ll update accordingly!
FREE DATA SOURCES
Agency for Healthcare Research and Quality (AHRQ/HHS, US)
Medical expenditures, cost, and utilization; hospitalizations; disparities; quality; HIV; grants.
http://www.ahrq.gov/data/
AHRQ HCUP (HHS, US)
Healthcare cost and utilization project. Utilization of healthcare services with special attention to ambulatory care, ED, and other select topics.
http://www.ahrq.gov/data/hcup/
AHRQ MEPS (HHS, US)
MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.
http://www.meps.ahrq.gov/mepsweb/
AHRQ NHDR (HHS, US)
National healthcare disparities report. Access data for quality of health care, access to health care, or for priority populations.
http://nhdrnet.ahrq.gov/nhdr/jsp/nhdr.jsp
National Center for Health Statistics (CDC, US)
Vital statistics, health care consumption, infrastructure, behavior surveys.
http://www.cdc.gov/nchs/
CDC Publications and Info Sheets (CDC, US)
http://www.cdc.gov/nchs/data/infosheets/infosheet_summary.htm
MedLine Plus Health Statistics (National Library of Medicine/NIH, US)
Simplified and appropriate for laypeople. Focuses on conditions and vital stats, but also includes links to other relevant databases.
http://www.nlm.nih.gov/medlineplus/healthstatistics.html
AgingStats (Agency on Aging, US)
http://www.agingstats.gov/agingstatsdotnet/main_site/default.aspx
Kaiser Family Foundation Stats (KFF, US)
Stats and reports on costs, insurance markets, uninsured, and much more.
http://www.kff.org/
Robert Wood Johnson Foundation Publications and Reports (RWJF, US)
http://www.rwjf.org/pr/
The Commonwealth Fund (US)
Maps, data, surveys, and meta-analyses relevant to health policy topics.
http://www.commonwealthfund.org/
NCQA Health Plan Report Card (NCQA, US)
http://reportcard.ncqa.org
USNews Best Health Plans
http://health.usnews.com/directories/health-plans/
NCQA HEDIS Quality Statistics (NCQA, US)
The Healthcare Effectiveness Data and Information Set (HEDIS) is a tool used by more than 90 percent of America’s health plans to measure performance on important dimensions of care and service.
http://www.ncqa.org/tabid/59/Default.aspx
Social Security Administration Budget and Performance Reports
http://www.ssa.gov/pgm/links_governance.htm
OMB Statements and Releases (White House, US)
http://www.whitehouse.gov/briefing-room/statements-and-releases
WHOSIS Global Health Statistics (WHO, Int’l)
An interactive database bringing together core health statistics for the 193 WHO Member States. It comprises more than 100 indicators.
http://www.who.int/whosis/en/
Cancer Trends Progress Report (NCI/NIH, US)
The report includes key measures of progress along the cancer control continuum and uses national trend data to illustrate where advances have been made.
http://progressreport.cancer.gov/
State Cancer Profiles (NCI/NIH, US)
Dynamic views of cancer stats for prioritizing cancer control efforts at the state level.
http://statecancerprofiles.cancer.gov/
UNStats (UN, Int’l)
Demographics and social concerns (disabilities, housing, welfare, disease) from participating global nations.
http://unstats.un.org/unsd/demographic/default.htm
ASPE Gateway to Data and Statistics (HHS, US)
Housing, risk factors, outcomes, disease, lost work days, spending.
http://www.hhs-stat.net/
SEER (NCI/NIH, US)
In-depth cancer statistics for the US.
http://seer.cancer.gov/index.html
American FactFinder (Census Bureau, US)
Demographics
http://factfinder.census.gov/home/saff/main.html?_lang=en
Topic: Health Insurance (Census Bureau, US)
http://www.census.gov/hhes/www/hlthins/hlthins.html
Data.gov (White House, US)
Everything…in multiple formats (.xls, .csv, .txt)…searchable.
http://www.data.gov/
HRSA HPSAs (HHS, US)
Health professional shortage areas.
http://hpsafind.hrsa.gov/
HINTS (NCI/NIH, US)
Health information survey results–perceptions, mental models of cancer, patient education outcomes, communications.
http://hints.cancer.gov/questions/index.jsp
Kaiser Family Foundation State Health Facts (KFF, US)
http://www.statehealthfacts.org/
State Scorecards (Commonwealth Fund, US)
View state-specific rankings and results compared to benchmarks, and to view the number of lives and dollars each state could save by achieving benchmark levels of performance
http://www.commonwealthfund.org/Maps-and-Data/State-Scorecard-2009.aspx
NHQR State Snapshots (AHRQ/HHS, US)
The State Snapshots provide State-specific health care quality information, including strengths, weaknesses, and opportunities for improvement. The goal is to help State officials and their public- and private-sector partners better understand health care quality and disparities in their State.
http://statesnapshots.ahrq.gov/snaps08/index.jsp
America’s Health Rankings (APHA et al, US)
State-by-state comparisons.
http://www.americashealthrankings.org/
National Resource Center: Health Information Technology (AHRQ/HHS, US)
Access project-specific information on the AHRQ health IT portfolio.
http://healthit.ahrq.gov/portal/server.pt?open=512&objID=650&parentname=CommunityPage&parentid=5&mode=2&in_hi_userid=3882&cached=true
NLM Reference: Disparities and Minority Health
Citations to journal literature, combining subject terms and title & abstract words on the topic.
http://www.nlm.nih.gov/services/health_disparities.html
Medicare Part D Claims Data (CMS, US)
http://www.cms.gov/PrescriptionDrugCovGenIn/08_PartDData.asp
Bureau of Labor Stats: Injuries, Illnesses, and Fatalities (BLS, US)
http://www.bls.gov/iif/
“CDC STATE” Tobacco Activities Tracking (CDC, US)
http://apps.nccd.cdc.gov/statesystem/Default/Default.aspx
Vaccine Safety Info and Stats (CDC, US)
http://www.cdc.gov/vaccinesafety/index.html
NHSN National Healthcare Safety Network (CDC, US)
http://www.cdc.gov/nhsn/
Traffic Fatalities and Accident Statistics (NHTSA, US)
http://www.nhtsa.dot.gov/people/ncsa/
KFF Global Health Facts (KFF, US)
http://globalhealthfacts.org/
CMS Physician Quality Reporting Initiative (CMS/HHS, US)
http://www.cms.gov/pqri/
CMS Physician Fee Schedule Lookup (CMS/HHS, US)
http://www.cms.gov/pfslookup/
CMS National Health Expenditure Data (CMS/HHS, US)
http://www1.cms.gov/NationalHealthExpendData/
USNews Best Hospitals (USNWR, US)
http://health.usnews.com/best-hospitals
American Hospital Directory (only partially free) (AHD, US)
http://www.ahd.com/
Hospital Compare (HHS, US)
http://www.hospitalcompare.hhs.gov
JC Accreditation Quality Check (JC, formerly “JCAHO”, US)
http://www.qualitycheck.org/consumer/searchQCR.aspx
National Report Card on the State of Emergency Medicine (US)
http://www.emreportcard.org/
ThomsonReuters Top 100 Hospitals
http://www.100tophospitals.com/
American Cancer Society Cancer Facts and Figures (ACS, US)
http://www.cancer.org/docroot/stt/stt_0.asp?from=fast
American Heart Association Statistics (AHA, US)
http://www.americanheart.org/presenter.jhtml?identifier=1200026
WHO ICD-10 Online (WHO, Int’l)
http://www.who.int/classifications/icd/en/
CMS DRG PC Pricer Software
http://www.cms.gov/PCPricer/
AMA Non-Commercial CPT lookup
https://catalog.ama-assn.org/Catalog/cpt/cpt_search.jsp
Chrisendres’ CPT lookup
http://icd9cm.chrisendres.com/
CMS Public-Use Provider Specific Facts
Details on adjustments to PPS system.
http://www.cms.gov/ProspMedicareFeeSvcPmtGen/03_psf_text.asp
Institute for Healthcare Improvement Improvement Topics (IHI, US)
http://www.ihi.org/ihi/topics
12manage
Management frameworks and encyclopedia.
http://www.12manage.com/start_page.asp
PubMed (NCBI/NLM/NIH, US)
http://www.ncbi.nlm.nih.gov/pubmed
Managed Care Digest Series (Sanofi/Aventis, US)
http://www.managedcaredigest.com
…if you can’t find it in the list above, try looking at another list:
http://phpartners.org/health_stats.html
SUBSCRIPTION-BASED ACCESS
University HealthSystem Consortium
Association of American Medical Colleges
American Hospital Association
NielsenClaritas PRIZM Consumer Behavior Segments
http://www.claritas.com/MyBestSegments/Default.jsp
SBI Values and Lifestyle VALS survey
http://www.strategicbusinessinsights.com/vals/presurvey.shtml
MGMA Physician Compensation Survey
Billian’s HealthData: “The Hospital BlueBook” (US)
April 20th, 2010 → 8:51 pm
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